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| At the Aquifer |
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| With Grandpa having dinner at Red Lobster |
Caleb continued to get scans everywhere - kidney, liver, spleen, heart, and brain. We were getting that horrible feeling that something isn't right, but no one wanted to admit it. We continued to pray and be optimistic - we convinced ourselves that these scans were routine.
HEART PROBLEMS & BIOPSY
In May 2010, the cardiologist scheduled an appointment so he can perform a full scan/study of Caleb's heart. The arrythmia was still a concern but with the combination of the meds Digoxin and Propafenone, Caleb's heart rate was steady. His rate was (and is) alarmingly slow for his age. Normally, his rate is at 70bpm or below. We all agree this is better than 200+ bpm. Everyone who knows Caleb is familiar with his heart rate. The staff in the hospital even referred to him as "the baby with the low heart rate."
At the check-up, the cardiologist was uber concerned with the "nodules" he discovered in his heart (five total). Most of all, he was perturbed with the nodule obstructing his superior vena cava (SVC). Apparently, the "tantrums" were causing the cyanosis. The cardiologist acted very quickly and called a meeting with all of Caleb's providers so they can discuss the best course of action.
Initially, a surgery (open heart) was thought to be the best plan to remove the obstruction - but it was dismissed due to the risks involved. We had to go with plan B. The plan was to scan the lungs and if similar nodules were present, biopsy the lung, study the sample and then figure out the least invasive procedure. So in a matter of days following the echocardiogram, Caleb found his way back to day surgery for a lung needle-biopsy.
Hours after the biopsy, Caleb was cleared to go home. The little trooper was all smiles in the recovery room after the procedure. Little did we know that the next day, we will be rushing him to the emergency room for an emergency surgery.
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